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Видео с ютуба Rare Disease Symposium

Batten Disease: What the Annual Family Conference means

Batten Disease: What the Annual Family Conference means

Symposium “From Orphan Diseases”

Symposium “From Orphan Diseases”

мое увлечение на симпозиуме по БАС #осведомленностьобАЛС #гордостьзаинвалидность #редкоезаболеван...

мое увлечение на симпозиуме по БАС #осведомленностьобАЛС #гордостьзаинвалидность #редкоезаболеван...

NEED Symposium 2025 - session   2

NEED Symposium 2025 - session 2

Canadian Organization for Rare Disorders holds a news conference – November 25, 2025

Canadian Organization for Rare Disorders holds a news conference – November 25, 2025

Meet the Couple Who FOUND LOVE at a Rare Disease Conference | Ep 18

Meet the Couple Who FOUND LOVE at a Rare Disease Conference | Ep 18

Appendix Cancer 2025 Symposium: General Session Pt 1 - Education in Fundamentals

Appendix Cancer 2025 Symposium: General Session Pt 1 - Education in Fundamentals

Dr. Phillips reflects on our International Porphyrias Symposium

Dr. Phillips reflects on our International Porphyrias Symposium

Dr. Akshata Moghe shares what stood out the most from the International Porphyrias Symposium

Dr. Akshata Moghe shares what stood out the most from the International Porphyrias Symposium

NI Rare Disease Research Update - Dr Grace McMacken - AMYLOIDOSIS IRELAND Conference 2025

NI Rare Disease Research Update - Dr Grace McMacken - AMYLOIDOSIS IRELAND Conference 2025

Unlocking hope for ultra-rare diseases - conference September 2024

Unlocking hope for ultra-rare diseases - conference September 2024

Canadian Rare Disease Symposium 2025 | Part II: Preparing for Clinical Trials

Canadian Rare Disease Symposium 2025 | Part II: Preparing for Clinical Trials

2024 SKS Conference - Drug Repurposing in Rare Disease (Chow)

2024 SKS Conference - Drug Repurposing in Rare Disease (Chow)

Dr. Vinay Prasad Keynote Address - NORD Scientific Symposium

Dr. Vinay Prasad Keynote Address - NORD Scientific Symposium

Conference

Conference "Caring for Rare", Belgrade, Sept 2025, National Organization for Rare Diseases in Serbia

2025 ZTTK Conference: Research Panel - Rare Disease Research and Future Opportunities

2025 ZTTK Conference: Research Panel - Rare Disease Research and Future Opportunities

Rare Disease Research Conference 2025 - Reflections

Rare Disease Research Conference 2025 - Reflections

Mapping Erdheim-Chester Disease in Europe through the Core Registry | Medical Symposium 2025

Mapping Erdheim-Chester Disease in Europe through the Core Registry | Medical Symposium 2025

BCL-2 Immunohistochemistry Expression in Patients with Histiocytosis | ECD Medical Symposium 2025

BCL-2 Immunohistochemistry Expression in Patients with Histiocytosis | ECD Medical Symposium 2025

Layers of Complexity: ECD Diagnosis and Management with Comorbidities | Medical Symposium 2025

Layers of Complexity: ECD Diagnosis and Management with Comorbidities | Medical Symposium 2025

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